SickleInAfrica Consortium

The Sickle In Africa consortium aims to facilitate research in Sickle Cell Disease (SCD) and the subsequent translation of this research into healthcare and health outcomes. Sickle in Africa is made up of three initiatives : Sickle Africa Data Coordinating Center (SADaCC), Sickle Pan-African Research Consortium (SPARCO) and Sickle Cell Pan African Network (SPAN).

SPARCO: Multinational consortium which is coordinated from a hub at the Muhimbili University of Health and Allied Science. SPARCO aims to develop research capacity for SCD through a multidimensional approach which addresses infrastructure, education & training, provision of longitudinal research data and the translation of research into practise.
SADaCC: An administrative, data standardization and coordinating center for Sickle Cell Disease research and infrastructure needs. Its current mandate is to focus on supporting and coordinating data and communications for a partner research network, SPARCO with plans to expand this support to research groups within SPAN in the future.
SPAN: A network of researchers, clinicians, funders and centers working in SCD which aims foster research and infrastructure development.

Standard Operating Procedures (SOPs), Guidelines and Templates

This platform provides Standard Operating Procedures (SOPs), guidelines and policies developed by the Sickle Africa Data Coordinating Center (SADaCC) in collaboration with the Sickle African Pan African Network (SPARCo). SOPs, guidelines and policies help standardize data and procedures at the SPARCo sites in-order to improve data quality and adhere to ethical requirements of the project. A key aspect about this platform is that each member of the SADaCC and SPARCo consortium will be assessed how well they comprehend the SOP, guidelines and policies assigned to their job description before their can commence their duties as well as after every 6 months.

SOPs Booklet & Quizzes

Webinar (Online Event)

Title Date, Time and duration
Standards of Care for Sickle Cell Disease 27 October 2022
14:00 CAT
1 hour
Socio-cultural challenges to optimal care for sickle cell disease in Africa. 28 September 2022
16:00 CAT
1 hr
Integrating patient and community engagement into Sickle Cell Disease research programs 24 August 2022
16:00 CAT
1 Hour
Sickle Cell Disease Research in Africa: Opportunities and Challenges 06 July 2022
16:00 CAT
1 Hour
SickleInAfrica Webinar Series 2022 Wednesday, 29 June 2022
16:00 CAT
1 hour
American Society of Hematology’s Sickle Cell Disease Efforts in Sub-Saharan Africa 17 February 2022
15:00 SAST
1 hour
Newborn Screening for SCD in Africa: Lessons from Nigeria Monday, 31 January 2022
15:00 SAST
1 hour
National Heart Lung Blood Institute (NHLBI) Annual Sickle Cell Disease (SCD) Research Meeting 2020 - Virtual Conference August 10-12, 2020
9:00 AM - 5:00 PM (EDT)
3 days
SCSSN and NSHBT - Virtual Conference Thursday, June 25th, 2020
4:00 pm - 7:00 pm WAT / 11:00 am EST / 08:00 am PST
3 hours
Gene Editing Workshop Thursday, June 18th, 2020
3-7pm CAT, 4-8pm EAT, 9am-1pm EDT, 8am-12pm CDT, 6-10am PDT, 9pm–1am (SGT)
4 hours

Pages

Upcoming Online Meetings

Title Date of Meeting
ELSI & Patients Group Monday, November 28, 2022
Steering Committee Monday, December 5, 2022
Publications Working Group Tuesday, December 6, 2022
SickleInAfrica Management and Coordination Monday, December 12, 2022
Skills & Standards of Care Working Groups Tuesday, December 13, 2022

Upcoming Fellowships

Title Deadline
Call for Applications: SickleInAfrica Research Fellowships Friday, July 22, 2022 - 00:00

Upcoming External Opportunities

Title Application Deadline Submitted On
Meade Collaboration Travel Grants in Epidemiology 2022 Wednesday, November 30, 2022 - 13:00 Sat, 11/26/2022 - 18:20
Molecular Genetics in Pediatric Neurology Fellowship in Italy on Trialect Thursday, July 6, 2023 - 00:00 Thu, 07/29/2021 - 08:29

External Presentations/Invited Talks

Title Date & Time
Sickle Cell Disease Coalition (SCDC) Wednesday, March 6, 2019 - 16:00