SCD registeries
Submitter:
Mrs Mina Cintho Ozahata
Contact Emails (insert as many as you like):
Organization:
University of Sao Paulo
Country Organization is based:
Brazil
Country Data was collected:
Brazil
SCD Phenotypes being collected:
Acute Chest Syndrome, Acute Cholecystitis, Acute Complications of Sickle Cell Disease, Acute Hepatic Sequestration, Acute Splenic Sequestration Crisis, Albuminuria, Alpha Thalassemia, Avascular necrosis, Cholecystitis, Cholelithiasis, Chronic Complications of Sickle Cell Disease, Chronic Pain, Fetal Hemoglobin, Hypoxia, Ischemia, Leg Ulcer, Priapism, Proteinuria, Seizure, Sepsis, Sickle Cell Dactylitis, Stroke, Vaso-Occlusive Crisis
Data collected Start Date:
2013-11-01
Data collected End Date (if it exists):
2015-12-22
Frequency of collection (eg: Every 6 months):
every year
Size of SCD cohort:
2793
Size of Controls:
Age ranges of cohort (Youngest – Oldest in years):
0-77
Website Link to your dataset:
N/A
Key publications around your dataset (links to pubmed):
N/A
Research area you might be interested in collaborating with other SCD researchers?:
N/A
Does your ethical approval allow data sharing?:
Yes
Funders:
NHLBI
Name & Surname of a Trainee from your group:
N/A
Do you genotype data for some/or all of your samples?
Yes
Please add any comments/suggestions/questions:
N/A
Please indicate whether you are willing to be a Lead PI for a multi-site collaborative research study:
N/A